Dravet Syndrome Foundation Research Newsletter
Content copyright . Dravet Syndrome Foundation.  All rights reserved.

April, 2010 Newsletter

 

 

Dravet Syndrome Foundation
Research Newsletter

It is the mission of the Dravet Syndrome Foundation to fund progressive research for better treatments for those with Dravet Syndrome - and
we will not stop until we find a cure.

April, 2010
Volume 2, Number 1

In This Issue

·    Linda Laux, MD
    2010 Gala Honoree

·    Wendy Chung, MD PhD

·    The Epilepsy
    Phenome/Genome Project
    (EPGP)

·    Gleeson Labs



The Dravet Syndrome Foundation is a volunteer-based, non-profit organization dedicated to raising research funds for Dravet syndrome.
Learn More…


Press>>



Upcoming Events
View…

 

 

 

Subscribe
Previous Newsletters
Article Archives

Contact Us
info@dravetfoundation.org

Dravet Syndrome Foundation
11 Nancy Drive
Monroe, CT 06468
(203) 880-9456
www.dravetfoundation.org

As a non-profit organization, outside support from those with an interest in
our cause is crucial to us achieving our goals and offering the best results for these children and families.


There is currently no cure
for Dravet syndrome.
Please support our efforts to change that.

   

 



Children with Dravet syndrome will not outgrow this condition and it effects every aspect of their daily lives


 

 

 

 

 

 

 

 

Linda Laux, MD

                   

The Dravet Syndrome Foundation was pleased to honor Dr. Linda Laux as the 2010 Gala Honoree at Ciara’s Butterfly Bash:  A Benefit for Children with Dravet Syndrome, at the Hyatt Regency Greenwich on Saturday, March 27th…
Continued>>

 

Wendy Chung, MD, PhD

As a clinical geneticist, I treat
children and adults with many
types of genetic disorders.
Increasingly, we are identifying ...

Continued>>



When a person is diagnosed with epilepsy, important questions arise: Why did this happen? Which treatment (or no treatment) is best for me? How long will the epilepsy last? Will any of my children or relatives be affected?

The Epilepsy Phenome/Genome Project (EPGP) is the largest study…
Continued>>

  

  

            

                       Information>>

 

 

 

 

 

_________________________________________________
Email Admin Center

This newsletter is a service of Dravet Syndrome Foundation. Should you no longer wish to receive these messages please click unsubscribe.  To ensure delivery of this newsletter to your inbox and to enable images to load in future mailings, please add newsletter@dravetfoundation.org to your
e-mail address book or safe senders list.

If you have any questions, comments or ideas for the newsletter please email kim.a@dravetfoundation.org

 
















































































































































Content copyright . Dravet Syndrome Foundation.  All rights reserved.